Barbara O'Neill's 9-year-old grandson, Tyler, has been fighting tuberous sclerosis since he was diagnosed with the disease at 18 months.
Tuberous sclerosis is a genetic disorder that causes tumors to form in different organs, primarily the brain, eyes, heart, kidneys, skin and lungs.
O'Neill said Tyler has been taking anti-seizure medication since he was diagnosed. "He is one of the fortunate ones that hasn't had to have any major surgeries," she said. "He is mentally challenged, but he is in special ed classes and is doing well. His smile warms your heart and you just want to squeeze him. "
O'Neill is chairing the 8th Annual Step Forward for a Cure for Tuberous Sclerosis at 10 a.m. today at El Dorado Park East's Lakeview Grove, Area III. Registration for the 5K walk/run begins at 10 a.m. For information, call 562-262-1120.